locked-in syndrome

  carver 10:19 19 Jun 2012

Last night I watched a TV programme about this man Tony Nicklinson and couldn't help but feel for the man.

I've tried to imagine what it must be like for him to have to go through every day having every thing done for him and for the life of me could not see me putting up with the life he has.

To go from a life that was active to what is now no more than a head on a stump unable to do any thing must be one of the worst things going.

On the film last night it was stated that some one with less disability's would have the option of suicide but he does not, what a strange world we live in.

  spuds 10:57 19 Jun 2012

The program was very interesting and moving, especially as it shown people who were perhaps decision makers, and how they saw things.

What also came across, was how this person was getting very upset when he was involved with people who may have had slightly different views and opinions. Yet this person wasn't able to express any real opinions except distortion of facial expression or though a computer voice machine.

Whether a verdict as to resolving the issues raised is made later this week, then we will have to wait and see.

One thing that I did ask myself, is how Tony Nicklinson compared to similar cases, perhaps others who are just as disabled but able to still communicate with outstanding works of science and the universe?.

  interzone55 11:31 19 Jun 2012

The Diving Bell and the Butterfly was written by Jean-Dominique Bauby who suffered from Locked-In Syndrome after a massive stroke

  Mr Mistoffelees 12:22 19 Jun 2012

Have heard much about Tony Nicklinson on our local news. I feel it would be unjust to not allow him to have his life ended when he feels he can no longer tolerate his life. If he were capable of ending his life himself he would be allowed to do so.

How he compares with other cases is, I believe, irrelevant. Just because some people can cope with being locked-in, does not mean all can.

  Aitchbee 13:09 19 Jun 2012

I experienced being 'locked in' twice, on different occasions, during the night while half awake/asleep.

I could see the surroundings of my bed-room...but I was unable to move.

It was very frightening.

  Forum Editor 19:01 19 Jun 2012

I struggle to imagine anything worse than being in this man's situation, and I'll be keeping my fingers crossed for him. His wife seems to have an eminently sensible approach to the subject of whether or not she could kill him, should the decision go the way he wants it to. She said in an interview today that she wishes with all her heart that her husband would change his mind, but she knows he will not, and she's ready to do what is necessary for him when the time comes.

Sometimes, when contemplating one's own troubles in life it's worth remembering what people like this have to contend with, and realising that perhaps things aren't as bad as they might seem.

  morddwyd 20:03 19 Jun 2012

"she's ready to do what is necessary for him when the time comes."

Courageous woman.

I have often pondered my response should my wife make this request of me, as, I suspect, have many carers.

I still don't know what my answer would be.

  interzone55 22:03 19 Jun 2012

It's the same with pets.

Many people will spend huge amounts of money keeping pets alive, but are they suffering unnecessarily?

Are we helping the pet, or are we helping ourselves. We don't want to be lonely so we keep the pet alive.

Pretty much the same with a family member but magnified...

  ams4127 22:32 19 Jun 2012

"Sometimes, when contemplating one's own troubles in life it's worth remembering what people like this have to contend with, and realising that perhaps things aren't as bad as they might seem."

So very true.

  spuds 23:58 19 Jun 2012

Courage comes in all shapes and manners, and a particular part of this program was of a female with MS who took the decision to end her own life. Which according to her father, must have been due to sheer strength and determination in her final moments.

If you can get a replay of the program, then its well worth a watching. not only was it produced well, but it also brought the message across, from various angles and with varied opinions.

Perhaps the major point of all this, is that you can be quite healthy one moment, enjoying life with perhaps a couldn't care attitude, and the next moment your world as seemingly gone completely upside down, and you can do very little about it, until?.

  Chegs ®™ 03:58 20 Jun 2012

Whilst I sympathise with this man & his family,why not travel to Switzerland & visit one of the clinics there specifically allowed to do this service? Probably much cheaper than fighting the laws of the land.

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